Enabling your research through NURTuRE

Researchers are now able to apply for access to NURTuRE samples and data. Initially this includes 150 different kinds of medical information, this will increase over the next year providing an important resource for approved researchers.

Images that have been taken of participant’s kidneys (n=400-450)*

Baseline and follow-up healthcare and quality of life data.

DNA sequences from INS patients and CKD
patients.

Information about the biological
samples.

*biopsy data priced separately

Now and for the future

NURTuRE is an evolving resource; the following data will be made available over the next year.

July 2024

150 fields of clinical information

Baseline CKD biomarker data and biopsy data

Exome sequencing data

Summer 2024

Annual refresh of hospital episode statistics (HES) and office for national statistics (ONS) data from NHS England

Winter 2024

Baseline INS biomarker data available and clinical data (UK Renal Registry) updated

Spring 2025

Follow-up biomarker data for CKD and INS cohorts available

Currently available data

Following an accepted application

  • Demographics

    Gender and ethnicity

  • Renal disease progression

           Date and onset of renal disease (CKD cohort only)

  • Comorbidities

           Includes status and diagnosis date

  • Family history

           Includes whether there is a family history of end stage kidney disease, ischaemic heart disease or diabetes

           Parent consanguinity and family history of INS (INS cohort only)

  • Diabetic complications

           Includes retinopathy, peripheral neuropathy and foot ulcers

  • Medications

           Includes drug name, dates, dosage, frequency and route

  • Laboratory results

          Includes data such as eGFR (serum creatinine), magnesium, CRP, uric acid, serum albumin, full blood count and others

          Includes blood pressure (INS cohort only)

  • Pathology

          Includes kidney type (transplant or native), kidney side and a histological summary

  • Relapses (INS cohort only)

          Includes kidney type, triggers, drug given for relapse and remission type (complete, partial or none)

  • Dialysis modality

          Haemodialysis, haemofiltration, haemodiafiltration, ultrafiltration, CAPD and APD among others

  • Plasmaphoresis

          Number of exchanges and the response

  • Kidney transplants

          Data and type, date of recurrence, date of failure, rejections and biopsies

  • Hospitalisations

          Reason for admission

  • Questionnaires

          EQ-5D-5L, HADS, IPOS, 6CIY 

          Children 7 years+ CHU9D, EQ-5D-Y (INS cohort only)